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There is a lot of talk about Health Care Repeal and Replacement and how this can hurt people with disabilities.
Seems like every other day there is a new proposal in Washington on how to repeal or replace the Affordable Care Act (ACA or ObamaCare). At this time that is all there is: proposals. However, as a person with a disability you should always be vigilant and take action on proposals that may affect your ability to access health care services such as medicines, doctor's visits, hospital and at home care.
We recommend that you stay tune to the news but also check out websites that are fighting for the interests of people with disabilities and take appropriate actions such as calling or emailing your Congressperson or the President and asking your friends, family members and care givers to do the same.
The following websites can help you stay informed and give you some action steps:
The National Council on Independent Livings - Advocacy Monitor website http://www.advocacymonitor.com/
Health Care for All Website https://www.hcfama.org/press
The Center on Budget and Policy Priorities http://www.cbpp.org/
Thanks to all that made calls, visited their legislators and rally at the State House. Thanks to your efforts the Disability Community has won a huge victory in the struggle to get a PCA overtime policy that supports consumers instead of hurting them. MassHealth has announced new overtime regulations that, among other things, establish a 50-hour cap for overtime (instead of 40) and allows up to 66 hours of overtime for continuity of care – people who have to be able to pay PCAs overtime in order to ensure that their needs are met.
But, don't take our word for it, read all about it here